First night.

First night on upped meds. Managed to sleep a little better, still sore when I woke up. Feeling pretty groggy from raising my amitryptline but I should get used to that, I did last time I raised it!

Pain clinic and update!

So, just quickly, tesco resolved my issues and I've since received equivalent TVs to what I ordered. Finally got some good customer service from a lovely lady called Shona.

Today was my pain clinic appointment. Been waiting for a few months and was anxious about it as I didn't know what to expect.
Met with a nice doctor who went through a number of reasons for pain, and how they can help treat it. The end result is:
I'll be coming off most medication.
My amitryptline will be increased from 60mg to 100mg at night.
My Butrans patch will be increased from 10mcg to a max of 52.5mcg but this will be slowly because of side effects.
I'll slowly stop taking Tramadol over this time, as the two go up.
I'm also going to be taking clonazepam when needed, we will see when that will be as the other meds have increased.
I'll also be taking tapentadol, can't remember the dose. 
And lastly pregabalin will be slowly increased up to, I think, 1200mg a day. 
I'll keep my diclophenac, omoprazol, ondansetron, folic acid and B12 injections as normal. 

So lots of changes, lots of strong medications being added in. I'm really hoping they manage to keep me level and feeling as close to how I used to as possible. 
They should also help with sleep, because I've been surviving on 2 hours most nights for a while! 
I've increased my patch to 20mg and my amitryptline to 100mg already, as suggested because I had supplies at home!

I'll let you know what happens and how I feel in a week or so! 

Update

I'm hoping by this evening I'll be able to update on the tesco situation, provided they stick to their word!

Update on me chiari wise. Well it's 5.13am and I've yet to sleep. I've got to be awake at 7am so this will be fun =\ I'm having more bad days than good but am just about managing. I've got a pain clinic appointment next Tuesday which I am looking forward to with great anticipation and hoping it will benifit me. Still waiting for a date for my next blood patch, which will be next year sometime. 

I'm enjoying all your emails and will try and reply to as many as I can as soon as I can, I've got a hectic week this week but things quieten down at the end of the week for Christmas so will have plenty of time. Please use the contact form on the right of the page and I'll get an email direct to my inbox. Or, alternatively, leave a comment on any post and I'll respond, this just takes me longer to see normally as I get no notifications so I'm not ignoring you if you get no reply swiftly. Have a lovely week =]

Chapter 2 in the story of tesco and their terrible customer service.

After the promise of a phone call and exchanging numerous tweets, guess what........tesco are still ignoring me. They clearly feel that they are above their customers and can keep my money without providing me with my items. Getting close to taking this further, and I mean beyond the realms of the virtual world and into a store.....LOUDLY complaining!

The story of Tesco and their terrible customer service!

Sometimes I think that if I get bad customer service I should just accept it. Sometimes the big man can scare you into silence and into retreate. However, sometimes you just want to shout loud and say what has happened to anyone who will listen.

Sit back, relax and let me tell you a story. A story of a newly married couple and a disabled student. 2 friends who are struggling to make ends meet. 

One day the two friends had a nice evening together spent with their respective partners. Both couples are money savers and like a good deal. Both couples were after a television, the newly married couple wanted to buy one from their wedding money and use it to show their wedding video to family and friends. During the evening they went online, and saw an amazing deal. A 50" 3D TV by LG with built in free view! WOW, they bought bought before snapping one up. An fantastic end to a great night. 

Now as you may have guessed one of the people in this story is me, the other my best friend. The story sounds fantastic, a great ending for two people. However, this is when the story goes sour. 

The orderes were placed with tesco direct (a company with a good reputation within the UK, much like walmart for all my international readers) The order was accepted and the money removed from my partners account as well as my friends. 

Now, we have come to realise over the past few day set that this was a price glitch, a fact we had not previously realised. 

When we arrived to collect our items there was a 22" TV waiting for each of us. Not what we had ordered and not what is on the emails we received from Tesco. 

Now, on Wednesday I went and had some surgery done, by Thursday I was sore but without my promised TV I had to spend a huge amount of time worrying and stressing over a TV. 

On Thursday evening my friend was told that she couldn't have the TV but could have one of equivalent specification. She went to another, larger tesco store to collect the item, before being made to wait again, she was then told she had to drive to another store, further away to collect the TV. And guess what. Once she got to her 3rd tesco store, she was told she wasn't getting anything and to go home. 

We were both told we would get the 50" TV with 3D but that we would need to wait due to stock issues. We were reassured to be told that we would get regular updates on progress. Now, since this, I have not heard from anyone. My friend has been told she will get hers on Wednesday but it will NOT be a 3D TV. 

My friend has spent 4 hours on the phone, 2 hours in store and today over an hour on twitter asking for a reply. 

I have spent 3 hours online chat (which the operator disconnected 4 times for no reason) sent 4 emails and spent over an hour on twitter. 

Tesco have got our money, yet are choosing to ignore us. 

They have ruined my best friends wedding video night, and destroyed both of our trust in them. 

We have been offered no goodwill from tesco for the hours we have spent chasing them, in fact we have been offered a TV with substantially less features than advertised for the same amount of money. 

Now tesco may have glitched on the price, but we bought the TV in good faith. They have lied and ignored the little man for too long. We are making a stand, come on tesco! Sort this mess out!

Chiari.

Has anyone been told they have both high and low pressure headaches following decompression? That's essentially what my neurosurgeon thinks I've got and I've never heard of anyone else having it 

Nil by mouth

So surgery tomorrow. Nil by mouth in 20mins. Wish me luck!