I'm gunna be unable to post on this blog for the next week or so, I know I've already been quite this past few weeks what with work and my blood patch, so sorry.
I've got my BFFs wedding this weekend so will be quite and for the next few days I've got work and then loads of little bits to do before Saturday. One little thing, when talking about the blog over dinner at the 2nd hen do last Friday I got moaned (not moaned, but asked why I hadn't said anything about it lol) at for not mentioning the wedding enough so I'll do a post about it in a week or so.
Chiari wise I am feeling oky ish. My headache are actually worse than before the blood patch. It almost feels like they have reverted to being high pressure, rather than low. Maybe it worked too well. Neck is still sore, standing up, bending over, turning, rolling over in bed ect is still able to induce a headache. It makes my vision go black and flash and this morning I woke up with real blurred vision. I should probs phone the eye hospital to get that checked as it was rather odd and also prolonged, I just haven't got time lol
See you in a week or so and I will back to doing reviews and weekday posts.
This is a blog all about me. It started as a blog about my diagnoses and treatment of a rare condition called chiari malformation and my long recovery from the required brain surgery. It is now a blog about me, my life and things I enjoy! I accept products to review! Just use the contact me form on the right hand side. All reviews I do are my own opinions of the products
Monday 19 August 2013
Wednesday 14 August 2013
All done
So yesterday I went into hospital to have my blood patch done. Got there at 7.30am after not getting to sleep till 2am the night before because I had to stop some of my meds in the lead up to the surgery and that made me uncomfortable.
Get seen by an anaesthetist, a registrar and my neurosurgeon before 8.30am. They then try and take blood from me.....an fail, like badly lol. Finally get it and all good to go once the result get back to show no infection in my blood, something that is ultra important for this procedure apparently.
Go down to theatre, well actually just the anaesthetic room. They then try to get a vein to put an IV in....and fail. My veins are buggered after all the antibiotics I had. Finally manage it after someone holds my wrist so tight I am still bruised. Get into position, my back hurting already. Due to the large number of lumbar puncture I have previously had and the lumbar drain my back is very very sensitive. Anything touching this area causes horrid pain. Get all the local in, which hurts big time. By this point realise that my sensitive back + a massive needle will = too much pain for me to handle.
I get rather upset at this thought. They stop for a bit, my neurosurgeon comes in (he wasn't doing this procedure, the anaesthetists are far better as they do so many) He chats to me about how crappy I have been feeling and how this procedure has a chance at making me feel great. Finally agree to carry on after getting a little something to chill me out, not loads but I was very upset so did need something.
Procedure goes oky, blood all went in without too much hassle.
Recover with a little bit of IV paracetamol (my favourite IV med by far) as I had a stinker of a headache. Then go back to the ward, 2 hours after leaving. Then have to lie flat for 2 hours. NOT FUN!! I had to do it overnight (6pm-10am) when I had my lumbar drain and I hated it, and this time was no better. It is very hard to get comfortable when totally 100% flat, even in bed pillows raise your head quite a way. Finally over, feeling headachey but oky I get to go home.
Last nights sleep was painful becuase everytime I rolled over I woke up due to pain in my back.
Feeling oky today, sore and stiff but nothing a day n bed won't fix. Now to hope this works by the time I see my neurosurgeon in a few months.
Get seen by an anaesthetist, a registrar and my neurosurgeon before 8.30am. They then try and take blood from me.....an fail, like badly lol. Finally get it and all good to go once the result get back to show no infection in my blood, something that is ultra important for this procedure apparently.
Go down to theatre, well actually just the anaesthetic room. They then try to get a vein to put an IV in....and fail. My veins are buggered after all the antibiotics I had. Finally manage it after someone holds my wrist so tight I am still bruised. Get into position, my back hurting already. Due to the large number of lumbar puncture I have previously had and the lumbar drain my back is very very sensitive. Anything touching this area causes horrid pain. Get all the local in, which hurts big time. By this point realise that my sensitive back + a massive needle will = too much pain for me to handle.
I get rather upset at this thought. They stop for a bit, my neurosurgeon comes in (he wasn't doing this procedure, the anaesthetists are far better as they do so many) He chats to me about how crappy I have been feeling and how this procedure has a chance at making me feel great. Finally agree to carry on after getting a little something to chill me out, not loads but I was very upset so did need something.
Procedure goes oky, blood all went in without too much hassle.
Recover with a little bit of IV paracetamol (my favourite IV med by far) as I had a stinker of a headache. Then go back to the ward, 2 hours after leaving. Then have to lie flat for 2 hours. NOT FUN!! I had to do it overnight (6pm-10am) when I had my lumbar drain and I hated it, and this time was no better. It is very hard to get comfortable when totally 100% flat, even in bed pillows raise your head quite a way. Finally over, feeling headachey but oky I get to go home.
Last nights sleep was painful becuase everytime I rolled over I woke up due to pain in my back.
Feeling oky today, sore and stiff but nothing a day n bed won't fix. Now to hope this works by the time I see my neurosurgeon in a few months.
Saturday 10 August 2013
It's oh so quiet...
So sorry for being so quite recently. I've been busy busy busy. My best friend is getting married in 2 weeks and I've been doing bridesmaid stuff and getting ready for that! Such important things as testing spray tans, having dress fittings and having girly lunch days.
Anyway, the 13th is creeping up on me. I'm going to hospital to have a blood patch on Tuesday to help (hopefully) with my low pressure headaches. Now this is something I am not looking forward to. I hate lumbar punctures with a passion and after so many of them as well as a lumbar drain for a week my back is now littered with tiny scar and is really tender. If I have my back itched the lower back area needs to be avoided. Even carrying a backpack which is pressing there hurts, big time. SO imagine having such a sensitive area then having a needle stuck into it like 10cm deep or something. So yeah, stoked for Tuesday =/
I should be out of hospital on Tuesday night/Wednesday morning at the very latest as long as it all goes to plan (which with me it has a tendency not to)
I will update either in hospital or when I get home. Actually, if I am allowed I will update half way through with the needle in my back, if my NS allows it. I also wanna get a photo!
Anyway, the 13th is creeping up on me. I'm going to hospital to have a blood patch on Tuesday to help (hopefully) with my low pressure headaches. Now this is something I am not looking forward to. I hate lumbar punctures with a passion and after so many of them as well as a lumbar drain for a week my back is now littered with tiny scar and is really tender. If I have my back itched the lower back area needs to be avoided. Even carrying a backpack which is pressing there hurts, big time. SO imagine having such a sensitive area then having a needle stuck into it like 10cm deep or something. So yeah, stoked for Tuesday =/
I should be out of hospital on Tuesday night/Wednesday morning at the very latest as long as it all goes to plan (which with me it has a tendency not to)
I will update either in hospital or when I get home. Actually, if I am allowed I will update half way through with the needle in my back, if my NS allows it. I also wanna get a photo!
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