Happy new year to you all. Hope you managed to usher in the new year with minimal pain and to my usa friends I hope you enjoy the rest of 2014.
I'm happy as I get my cast off tomorrow....woooooo!
This is a blog all about me. It started as a blog about my diagnoses and treatment of a rare condition called chiari malformation and my long recovery from the required brain surgery. It is now a blog about me, my life and things I enjoy! I accept products to review! Just use the contact me form on the right hand side. All reviews I do are my own opinions of the products
Wednesday 31 December 2014
Thursday 25 December 2014
Merry Christmas!
Happy Christmas to you all. I had a fantastic family day full of hecticness, laughter and love. It was perfect!
Thursday 18 December 2014
1. Diagnosed when? March 30th 2010
2. Decompressed, if so when? July 29th 2011
3. Other additional conditions, if so which ones? Pernicious Anaemia, scoliosis and pressure issues
4. Have you personally met someone else with Chiari? Yep, about 20, maybe more
5. Most challenging symptom(s)? The headaches, they drive me nutty
6. Most embarrassing Chiari moment? Being shouted at in the street because someone thought I was drunk, I wasn't, I was just having a wobbly day.
7. Biggest Chiari frustratsions(s)? Struggling with uni work as my brain is so fuzzy
8. Number of medications in your personal medicine cabinet? 8, all different painkillers, antidepressants and antipsychotics
9. Number of Doctors/Therapists stored in your phone? 3, my GP, neurosurgeon and my psychiatrist
10. Do you attend Dr appointments solo or with support? I used to go alone, but recently I have been taking a friend or a family member
11. Biggest regret that Chiari has created? I try not to have regrets, so I am oky with everything
12. Biggest lesson that Chiari has taught? To never take health for granted, I was young ad foolish when I was diagnosed, I feel I have grown up a lot since diagnoses
13. Favorite non-medicinal therapy? I discovered acupuncture recently as I had whiplash and loved it!
14. Worst medicinal side effect? Fuzzy headedness which makes my thinking much slower than I am use to
15. Biggest change in your life since diagnosis? I quit my job and went back to university!
16. Worst medical test? I HATE lumbar punctures, I've had about 20 and have so much scar tissue there that when they put the needle in it hurts and it gets worse each time.
17. Hardest thing to give up because of Chiari? Working
18. Have you become more or less religious since diagnosis? I am a total atheist and that hash\t changed since I was diagnoses
19. Where do you find enjoyment now, that you didn't before? In simple things such as baking, crafting and also just spending time with the family and my friends. I enjoy it much more now.
20. Favorite Chiari websites?I don't have one
2. Decompressed, if so when? July 29th 2011
3. Other additional conditions, if so which ones? Pernicious Anaemia, scoliosis and pressure issues
4. Have you personally met someone else with Chiari? Yep, about 20, maybe more
5. Most challenging symptom(s)? The headaches, they drive me nutty
6. Most embarrassing Chiari moment? Being shouted at in the street because someone thought I was drunk, I wasn't, I was just having a wobbly day.
7. Biggest Chiari frustratsions(s)? Struggling with uni work as my brain is so fuzzy
8. Number of medications in your personal medicine cabinet? 8, all different painkillers, antidepressants and antipsychotics
9. Number of Doctors/Therapists stored in your phone? 3, my GP, neurosurgeon and my psychiatrist
10. Do you attend Dr appointments solo or with support? I used to go alone, but recently I have been taking a friend or a family member
11. Biggest regret that Chiari has created? I try not to have regrets, so I am oky with everything
12. Biggest lesson that Chiari has taught? To never take health for granted, I was young ad foolish when I was diagnosed, I feel I have grown up a lot since diagnoses
13. Favorite non-medicinal therapy? I discovered acupuncture recently as I had whiplash and loved it!
14. Worst medicinal side effect? Fuzzy headedness which makes my thinking much slower than I am use to
15. Biggest change in your life since diagnosis? I quit my job and went back to university!
16. Worst medical test? I HATE lumbar punctures, I've had about 20 and have so much scar tissue there that when they put the needle in it hurts and it gets worse each time.
17. Hardest thing to give up because of Chiari? Working
18. Have you become more or less religious since diagnosis? I am a total atheist and that hash\t changed since I was diagnoses
19. Where do you find enjoyment now, that you didn't before? In simple things such as baking, crafting and also just spending time with the family and my friends. I enjoy it much more now.
20. Favorite Chiari websites?I don't have one
So I'm still in this flipping plaster cast on my right arm. I swear it shouldn't be this sore after so many weeks. I am not getting it off till January 2nd, which is annoying.
My chiari has been playing up, headaches are pretty bad.
My schizoaffective disorder is still troubling but I am going up on my meds so that might help.
I am excited for christmas, Jacob (my 5 year old brother) is really excited which makes me excited.
Anyway, a merry, painfree christmas and a happy new year, I will see you next year!
My chiari has been playing up, headaches are pretty bad.
My schizoaffective disorder is still troubling but I am going up on my meds so that might help.
I am excited for christmas, Jacob (my 5 year old brother) is really excited which makes me excited.
Anyway, a merry, painfree christmas and a happy new year, I will see you next year!
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