Wednesday, 11 December 2013

First night.

First night on upped meds. Managed to sleep a little better, still sore when I woke up. Feeling pretty groggy from raising my amitryptline but I should get used to that, I did last time I raised it!

Tuesday, 10 December 2013

Pain clinic and update!

So, just quickly, tesco resolved my issues and I've since received equivalent TVs to what I ordered. Finally got some good customer service from a lovely lady called Shona.

Today was my pain clinic appointment. Been waiting for a few months and was anxious about it as I didn't know what to expect.
Met with a nice doctor who went through a number of reasons for pain, and how they can help treat it. The end result is:
I'll be coming off most medication.
My amitryptline will be increased from 60mg to 100mg at night.
My Butrans patch will be increased from 10mcg to a max of 52.5mcg but this will be slowly because of side effects.
I'll slowly stop taking Tramadol over this time, as the two go up.
I'm also going to be taking clonazepam when needed, we will see when that will be as the other meds have increased.
I'll also be taking tapentadol, can't remember the dose. 
And lastly pregabalin will be slowly increased up to, I think, 1200mg a day. 
I'll keep my diclophenac, omoprazol, ondansetron, folic acid and B12 injections as normal. 

So lots of changes, lots of strong medications being added in. I'm really hoping they manage to keep me level and feeling as close to how I used to as possible. 
They should also help with sleep, because I've been surviving on 2 hours most nights for a while! 
I've increased my patch to 20mg and my amitryptline to 100mg already, as suggested because I had supplies at home!

I'll let you know what happens and how I feel in a week or so! 

Sunday, 1 December 2013


I'm hoping by this evening I'll be able to update on the tesco situation, provided they stick to their word!
Update on me chiari wise. Well it's 5.13am and I've yet to sleep. I've got to be awake at 7am so this will be fun =\ I'm having more bad days than good but am just about managing. I've got a pain clinic appointment next Tuesday which I am looking forward to with great anticipation and hoping it will benifit me. Still waiting for a date for my next blood patch, which will be next year sometime. 
I'm enjoying all your emails and will try and reply to as many as I can as soon as I can, I've got a hectic week this week but things quieten down at the end of the week for Christmas so will have plenty of time. Please use the contact form on the right of the page and I'll get an email direct to my inbox. Or, alternatively, leave a comment on any post and I'll respond, this just takes me longer to see normally as I get no notifications so I'm not ignoring you if you get no reply swiftly. Have a lovely week =]