Wednesday, 6 July 2016

Long time no see

im sorry I've not updated in ages. I'm still struggling with my Chiari. My neurosurgeon discharged me from his care but I'm still suffering. I'm planning on asking my GP for a referral to another doctor, maybe up in Liverpool. I get almost daily headaches and any form of straining makes my head bang.

I've still got issues regarding my mental health. Incase you missed it, I have been diagnosed as having schizophrenia. I am on a few medications to try and curb the voices, hallucinations, paranoia and dillusions. They are about 50% effective.

So say hi if you still pop on and read my blog. Love to you all!

Wednesday, 31 December 2014


So I drunk alcohol with caffeine in so gone 3am on New Year's Day and I'm still wide awake! 
Happy new year to you all. Hope you managed to usher in the new year with minimal pain and to my usa friends I hope you enjoy the rest of 2014. 
I'm happy as I get my cast off tomorrow....woooooo! 

Thursday, 25 December 2014

Merry Christmas!

Happy Christmas to you all. I had a fantastic family day full of hecticness, laughter and love. It was perfect!

Thursday, 18 December 2014

1. Diagnosed when? March 30th 2010

2. Decompressed, if so when? July 29th 2011

3. Other additional conditions, if so which ones? Pernicious Anaemia, scoliosis and pressure issues

4. Have you personally met someone else with Chiari? Yep, about 20, maybe more

5. Most challenging symptom(s)? The headaches, they drive me nutty

6. Most embarrassing Chiari moment? Being shouted at in the street because someone thought I was drunk, I wasn't, I was just having a wobbly day.

7. Biggest Chiari frustratsions(s)? Struggling with uni work as my brain is so fuzzy

8. Number of medications in your personal medicine cabinet? 8, all different painkillers, antidepressants and antipsychotics

9. Number of Doctors/Therapists stored in your phone? 3, my GP, neurosurgeon and my psychiatrist

10. Do you attend Dr appointments solo or with support? I used to go alone, but recently I have been taking a friend or a family member
11. Biggest regret that Chiari has created? I try not to have regrets, so I am oky with everything

12. Biggest lesson that Chiari has taught? To never take health for granted, I was young ad foolish when I was diagnosed, I feel I have grown up a lot since diagnoses

13. Favorite non-medicinal therapy? I discovered acupuncture recently as I had whiplash and loved it!

14. Worst medicinal side effect? Fuzzy headedness which makes my thinking much slower than I am use to

15. Biggest change in your life since diagnosis? I quit my job and went back to university!
16. Worst medical test? I HATE lumbar punctures, I've had about 20 and have so much scar tissue there that when they put the needle in it hurts and it gets worse each time.

17. Hardest thing to give up because of Chiari? Working

18. Have you become more or less religious since diagnosis? I am a total atheist and that hash\t changed since I was diagnoses

19. Where do you find enjoyment now, that you didn't before? In simple things such as baking, crafting and also just spending time with the family and my friends. I enjoy it much more now.

20. Favorite Chiari websites?I don't have one
So I'm still in this flipping plaster cast on my right arm. I swear it shouldn't be this sore after so many weeks. I am not getting it off till January 2nd, which is annoying.
My chiari has been playing up, headaches are pretty bad.
My schizoaffective disorder is still troubling but I am going up on my meds so that might help.
I am excited for christmas, Jacob (my 5 year  old brother) is really excited which makes me excited.

Anyway, a merry, painfree christmas and a happy new year, I will see you next year!

Sunday, 30 November 2014

So I finally got a new piercing! I love it! 
Also update on my wrist. I've broken the base of my thumb. So annoying, especially at this time of year! 


Monday, 24 November 2014


If I was one of the 7 dwarfs, I would be clumsy.
So last week I was getting out of bed, and due to my chiari sense of balance I over balanced and smacked my arm on a bedside cabinet. It hurt but I've had worse. I continued to do my thing for the next few days until it became more than just a bumped arm. 4 days after the accident I decided to get it checked out.
And, of course, I have broken my wrist. I am now in an arm cast, including my thumb. It is rather annoying as you can well imagine. So my plans for neck piercings didn't come into fruition. I am hoping to get them done this side of christmas but it may have to wait until the new year now =[