My operation will be one day between 18th July and 29th July. May be the first 1 or 2 days of August but that is not likely apparently.
I should hear next week or early the week after with a 100% date.
All I want to do is be well enough to go on the Chiari walk in September. Really looking forward to it now, loved it last year. I found it really helpful!
It is 18th September at Southsea sea front Portsmouth if any UK chiarians not on facebook read this. This year we are supporting The Ann Conroy trust, last year we were not official!
This is a blog all about me. It started as a blog about my diagnoses and treatment of a rare condition called chiari malformation and my long recovery from the required brain surgery. It is now a blog about me, my life and things I enjoy! I accept products to review! Just use the contact me form on the right hand side. All reviews I do are my own opinions of the products
Friday, 17 June 2011
Monday, 13 June 2011
All about me!
A collection of photos of me and the people I talk about in my blog! I ramble on and on about people so thought they could dhow there faces =D
This is me! Not a great photo but it'll do =D
Me and my wonderful Boyfriend Richard. We have been together for 5 years and he is amazing!
Me and Clairey! She is awesome!
Me, My bestie Hannah and The wonderful Keith Lemon...Bang Tidy!
My Mummy. I am a total Mummies girl and I love her sooooooo much She is the bestest person in the world!
My brother Michael. He is almost 21. We are all a really close family. Michael lives the other side of the New forest but we still see him once a week or so.
This is Karen AKA Carrot AKA pee wee. She is my little sister. She is almost 18. She is great even if we did fight when sharing a room. To be honest though, now I would love to have her back fighting with me =D
My other little Brother. He is almost 15 (I think)
So that is me. Everything you need to know! The above people are my world tbh
This is me! Not a great photo but it'll do =D
Me and my wonderful Boyfriend Richard. We have been together for 5 years and he is amazing!
Me and Clairey! She is awesome!
Me, My bestie Hannah and The wonderful Keith Lemon...Bang Tidy!
My Mummy. I am a total Mummies girl and I love her sooooooo much She is the bestest person in the world!
My brother Michael. He is almost 21. We are all a really close family. Michael lives the other side of the New forest but we still see him once a week or so.
This is Karen AKA Carrot AKA pee wee. She is my little sister. She is almost 18. She is great even if we did fight when sharing a room. To be honest though, now I would love to have her back fighting with me =D
My other little Brother. He is almost 15 (I think)
So that is me. Everything you need to know! The above people are my world tbh
June 13th
No new yet of course. I am still waiting for a date.
In other news it was my birthday last Tuesday so have had a busy week. Had a BBQ, made my birthday cake and went to the pub on Monday night with a big group of us and had a few drinks and my normally rubbish balance was made a billion times worse =S
Tuesday my brother Michael (who is 20, not my little, little brother Jacob) took me shopping and we generally just chilled in Southampton.
Wednesday I went out for dinner with Richard, Michael and his girlfriend Nikita. We went to an all you can eat Chinese, twas yummy!
Thursday I went to see Ivanah and her family. Ivanah has chiari as well and lives about 5 miles away from me. I love chilling out with her and her family are great as well!
Friday I took a well earned day off and chilled!
Saturday I went cosmic bowling with my besties Hannah and Claire and our boyfriends.
Sunday I baked a cake for my Mums Godsons 12th birthday and went for a BBQ (inside as it was chucking it down)
It is now Monday and I am feeling ROUGH as I have been on the go for so long. Chilling today, Doctors tomorrow and seeing Ivanah on Wednesday!
I shall update again and hopefully have some good news (I swear I say that in every updates lol)
In other news it was my birthday last Tuesday so have had a busy week. Had a BBQ, made my birthday cake and went to the pub on Monday night with a big group of us and had a few drinks and my normally rubbish balance was made a billion times worse =S
Tuesday my brother Michael (who is 20, not my little, little brother Jacob) took me shopping and we generally just chilled in Southampton.
Wednesday I went out for dinner with Richard, Michael and his girlfriend Nikita. We went to an all you can eat Chinese, twas yummy!
Thursday I went to see Ivanah and her family. Ivanah has chiari as well and lives about 5 miles away from me. I love chilling out with her and her family are great as well!
Friday I took a well earned day off and chilled!
Saturday I went cosmic bowling with my besties Hannah and Claire and our boyfriends.
Sunday I baked a cake for my Mums Godsons 12th birthday and went for a BBQ (inside as it was chucking it down)
It is now Monday and I am feeling ROUGH as I have been on the go for so long. Chilling today, Doctors tomorrow and seeing Ivanah on Wednesday!
I shall update again and hopefully have some good news (I swear I say that in every updates lol)
Wednesday, 1 June 2011
News.......what news?!
So no updates for a while but nothing much has happened to be totally honest.
I have been told I am 3rd on my Neurosurgeons list, and that they are sorting out the dates for my operation this week or next week, so should hear fairly soon.
My headache is still there and not really changed and is still triggered by pretty much anything.
I have been struggling with more and more neck pain and relying on a neck brace to keep my head feeling vaguely normal. It is almost as if my head gets lifted into a "normal" position with the neck brace on and then when I take it off my silly head slips down my neck. Haha I am odd!
It is my birthday in a weeks time....I will be old! Having a few friends round for what will probably be a typical English BBQ, I.E raining. Then going to the pub to get WASTED, which for me means a few drinks so I don't get a crazy interaction with meds. So everyone else can get wasted. Oh the joys of Chiari lol.
My next update will be my operation date! (It probably won't be but it is good to be optimistic lol)
I have been told I am 3rd on my Neurosurgeons list, and that they are sorting out the dates for my operation this week or next week, so should hear fairly soon.
My headache is still there and not really changed and is still triggered by pretty much anything.
I have been struggling with more and more neck pain and relying on a neck brace to keep my head feeling vaguely normal. It is almost as if my head gets lifted into a "normal" position with the neck brace on and then when I take it off my silly head slips down my neck. Haha I am odd!
It is my birthday in a weeks time....I will be old! Having a few friends round for what will probably be a typical English BBQ, I.E raining. Then going to the pub to get WASTED, which for me means a few drinks so I don't get a crazy interaction with meds. So everyone else can get wasted. Oh the joys of Chiari lol.
My next update will be my operation date! (It probably won't be but it is good to be optimistic lol)
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