So, I was wondering if anyone could help. I was after some UK based research about chiari looking fine on a lying MRI and still having problems post op. Either something going wrong with the op or with it being visable on standing. Walton centre stuff would be awesome! X
This is a blog all about me. It started as a blog about my diagnoses and treatment of a rare condition called chiari malformation and my long recovery from the required brain surgery. It is now a blog about me, my life and things I enjoy! I accept products to review! Just use the contact me form on the right hand side. All reviews I do are my own opinions of the products
Friday, 31 January 2014
Wednesday, 29 January 2014
Here we go again....
It has been a very short 5 months since I last had needles shoved in my spine. This is, for me, a long time between interventions but despite this I still detest the needles, only the ones in my spine, oddly.
Tomorrow I'm back in hospital for yet another blood patch, in an attempt to stope these unrelenting headaches.
Wish me luck, I'll keep you updated!
Tomorrow I'm back in hospital for yet another blood patch, in an attempt to stope these unrelenting headaches.
Wish me luck, I'll keep you updated!
Friday, 24 January 2014
I've been rubbish I know.
Sorry for not posting more, had a stress filled few months! So much work! I'll try and get back to doing this far more.
Anyway, thought I should let you know I'm having my next procedure this Thursday. I'm groping in for my second blood patch. My surgeon wanted to give it another go, and as I trust him, I'm willing to go for it, even if I HATE lumbar punctures more than anything!
My pain meds have been working oky, however, the meds they gave me for breakthrough pain are having to be taken so often that I don't really have anything left for when I have a real spike in pain. Had one last Monday, came home early and my mum found me sobbing a while later =[ I went to the GP and he suggested I had a urine infection, even though I had no symptoms, had no problems with my waterworks ect. The only problems I had were a headache, stiff neck and a little bit of a temperature. I think he is just unaware of chiari and how much it can hurt.
So yeah, hoping that when I see the pain clinic at the beginning of March they will be able to adjust everything.
Also, I don't know I've I have previously mentioned this, I went and had a hearing test a few week ago, cos I was struggling in lectures and having to sit right at the front and if those seats had been taken. I would struggle big time. Also, was getting annoying for everyone at home for me to keep asking them to repeate themselves. So I am still, following my last test, pretty hard of hearing. I had hearing aids a while ago, but gave them back to pay to be seen privately about my chiari. Now I have to save £1300 ish to get the aids I need =[ hard now I am a student!
Anyway, if I don't update before, I will let everyone know how Thursday goes!
Anyway, thought I should let you know I'm having my next procedure this Thursday. I'm groping in for my second blood patch. My surgeon wanted to give it another go, and as I trust him, I'm willing to go for it, even if I HATE lumbar punctures more than anything!
My pain meds have been working oky, however, the meds they gave me for breakthrough pain are having to be taken so often that I don't really have anything left for when I have a real spike in pain. Had one last Monday, came home early and my mum found me sobbing a while later =[ I went to the GP and he suggested I had a urine infection, even though I had no symptoms, had no problems with my waterworks ect. The only problems I had were a headache, stiff neck and a little bit of a temperature. I think he is just unaware of chiari and how much it can hurt.
So yeah, hoping that when I see the pain clinic at the beginning of March they will be able to adjust everything.
Also, I don't know I've I have previously mentioned this, I went and had a hearing test a few week ago, cos I was struggling in lectures and having to sit right at the front and if those seats had been taken. I would struggle big time. Also, was getting annoying for everyone at home for me to keep asking them to repeate themselves. So I am still, following my last test, pretty hard of hearing. I had hearing aids a while ago, but gave them back to pay to be seen privately about my chiari. Now I have to save £1300 ish to get the aids I need =[ hard now I am a student!
Anyway, if I don't update before, I will let everyone know how Thursday goes!
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