Chiari is a real pain

So I'm off to see my neurosurgeon in the next week or so to talk about the continuing intensity of my chiari symptoms. I've had a return of the cough headache since not too long post op but it is just getting worse and worse. I'm getting it just from the pressure of laughing, coughing and even standing up, I feel the pressure or force of doing so and that creates a headache. I'm also having continuing low pressure headache and just generally feel like shite.
Sorry for lack of posts but you know, when you feel crap it just stops you wanting to do anything =\