Saturday, 5 May 2012


It is less than 1 month until the UK's only chiari awareness walk. This is being held in Southsea. This is the 3rd year and, so far, looks like it will be the biggest! Last year we had about 20 people with chiari, plus many more supporters and it is growing larger by the year.

This years walk is on Sunday 3rd June, which is Royal Jubilee weekend (4 day weekend!!!) and also half term holiday weekend. The theme of this years walk is Royalty, so kings and queens and knights and jesters wanted. Come along in fancy dress, and enjoy our picnic and children's entertainment! For more details email me on

Now there has been a fair few of us beavering away behind the scenes to make this a success like the previous ones have been, and the one thing we seem to be lacking is raffle prizes. If any UK people can help, can you please shoot an email to

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