Yet another MRI

A month since my last MRI of my brain and orbits and I am having yet another. This time one of my brain and full spine so it will, no doubt, take hours. No appointment yet but had an answer phone message from my neurosurgeon to say it is in prep for the next procedure that he want me to have. Wonderful!

Tummy turns

Nausea is hitting me big time the past few weeks. My tummy feels like it is turning by lunchtime everyday. Doctor is contacting my neurosurgeon tomorrow =/

6/5/13

So I had an eye appointment 2 weeks ago. It was fine. My eyes have got worse again, vision wise but they think it is not due to a refraction error but something neurological. SO they have phoned my neurosurgeon and he will be in contact. My next eye appointment is 3rd June so not too much gap between appointments.
Headaches have been getting worse and worse. Neck pain has also been really bad and so I am still needing a max dose of painkillers everyday.
Also have a hen do weekend at the end of the month, so that will need lots of rest prior to going as I will be VERY tired!
Not too much else to update on, will update again after my next eye appointment.

Quick update!

I have an MRI scan next Tuesday at 5pm GMT. It is of both my brain/c-spine as well as my orbits and optic nerves. I will then have another eye appointment on Monday 22nd of APril at 9.15am GMT. I would appreciate good vibes, getting annoyed at the endlessness of this so would like an end to be in site! Has only been a few weeks since my last eye appointment (about 3 weeks ago I think) so getting seen more and more regularly due to deterioration!

Neglect

I have been neglecting my blog for a while now!
I am doing oky, not great but it'll do. Still having horrible chiari pain, still waiting to see my neurosurgeon again, still having to see the eye clinic all the time ect ect.
Good news is I have a friend with chiari coming to visit me from New York, I pick her up from London in 5 days =D
I will be sure to update properly after her trip

Blergh!

So been sleeping really really badly and having more and more pain. I am actually getting upset at the thought of getting out of bed because I know by 10am I will be hurting. I am back to taking codine, paracetamol, tramadol, diclophenac many times a day as well as wearing my pain patch. Doctors visit in order I think

Happy new year

Have had a headache all year! Can literally say that. Woke up this morning and after lifting my head from the pillow my first words were "OUCH" So sick and tired of my head being sore all the time!!